Start Submission Become a Reviewer

Reading: User experiences with intrathecal baclofen treatment in a hospital setting

Download

A- A+
Alt. Display

Conference Abstracts

User experiences with intrathecal baclofen treatment in a hospital setting

Authors:

Lena Skovgård Petersen ,

Odense University Hospital, Denmark, DK
X close

Helle Hvilsted Nielsen,

Odense University Hospital, Denmark, DK
X close

Anne Dichmann Sorknæs,

Odense University Hospital, Denmark, DK
X close

Charlotte Nielsen

University College Odense, DK
X close

Abstract

Introduction:  Intrathecal baclofen is a highly specialized treatment to manage severe spasticity practiced in hospital settings. Often severely immobilized and cognitively impaired patients are unaccompanied by their caregivers when they visit the hospital. This leaves the hospital staff poorly equipped to assess the effect of the patients’ treatment. A dialog between the patient, their caregivers and the healthcare professionals are crucial for adjustment of the treatment according to spasticity and life circumstances. During the Covid-19 pandemic, a temporary arrangement with home visits for patients treated with intrathecal baclofen was established. Some patients therefore had experiences with home visits.

Aim and objectives: The study aims to create knowledge about patients´, caregivers’ and healthcare professionals' experiences with intrathecal baclofen in both hospital settings and any previous home visits and the needs for a sustainable home service solution. The study is a qualitative explorative study with a phenomenological-hermeneutic approach. Participant observations and semi-structured interviews were used complementary. In total 26 patients, caregivers and healthcare professionals participated in either interviews or participant observations. Data were structurally analyzed by Interpretative phenomenological analysis and themes, and subthemes were identified.

Results: Three themes were identified 1) Treatment at the hospital is stressful for patients. Transport to the hospital was exhausting for patients who were in pain after being transported in uncomfortable cars for disabled. The waiting time was unpredictable and they had to cancel all other appointments for the day. 2) Caregivers expect the treatment to be attended at the hospital. The caregivers had difficulties prioritizing the escort of patients. The hospital was a different world to caregivers, and the communication with the healthcare professionals was in a language they did not understand. 3) Important insights at the expense of a new work stream. Patients and caregivers were satisfied with the temporary arrangement with home visits and experienced it as a relief to avoid the transport to the hospital. The nurse practitioners got a valuable insight into the patients’ everyday life and experienced working more holistically with the treatment.

Conclusion: Time spend on transport was exhausting for patients. Most caregivers had difficulties prioritizing the escort of patients and did not understand the importance of their information. Home visits was a relief for both patients and caregivers and the nurse practitioners got a new insight into the patients’ everyday life.

Implication for practice: There is a need for rethinking solutions for patients who receive recurrent treatment which depend on the exact information from caregivers. The nurse practitioners felt home visits is a good solution if it is possible in an organizational way instead of seeing patients at the hospital.

How to Cite: Petersen LS, Nielsen HH, Sorknæs AD, Nielsen C. User experiences with intrathecal baclofen treatment in a hospital setting. International Journal of Integrated Care. 2022;22(S3):26. DOI: http://doi.org/10.5334/ijic.ICIC22010
8
Views
Published on 04 Nov 2022.

Downloads

  • PDF (EN)